Despite Progress, Black Americans See Heart Health Disparities

Feb. 22, 2023 – It was week 17 of what should have been a typical Monday Night Football showdown featuring the Buffalo Bills and the Cincinnati Bengals. But Bills safety Damar Hamlin’s tackle of Bengals receiver Tee Higgins may ultimately have been a game changer – not only for football, but for heart disease disparities in the U.S. as well.

Hamlin, 24, who had sudden cardiac arrest after getting hit in the chest by Higgins’s right shoulder during the first quarter of the Jan. 2 matchup, was down for roughly 19 minutes while first responders did cardiopulmonary resuscitation (CPR) and used an automated external defibrillator (AED) to restart his heart. The incident – which has focused attention on a rare condition (commotio cordis) and the importance of public action – may also be a turning point for a community that has long been in the spotlight for having poor heart health: Black Americans.

“Even though we’ve made tremendous progress in reducing the burden of heart attack and stroke, we need a different approach to get everyone’s attention,” says Clyde Yancy, MD, chief of cardiology and vice dean for diversity and inclusion at Northwestern Medicine in Chicago, and past president of the American Heart Association.

“Case in point is the episode with Damar Hamlin; everybody in the country is now aware of the benefit of CPR,” he says. “We haven’t always been able to leverage a moment that gets the attention of the community in such a rapid and robust way.”

This especially true of many Black Americans, for whom community support for health and wellbeing is common.   

“That’s the beginning of change that can happen across the board,” Yancy says.

Persisting Disparities, Social Ties

Black adults continue to have the highest rates of hypertension (high blood pressure) and have related complications at an earlier age, according to the American Heart Association. 

Increased rates of heart failure, stroke, and narrowed blood vessels that reduce blood flow to the limbs (peripheral artery disease) also disproportionately affect Black Americans, even though overall rates of coronary heart disease are not significantly different than those found in white peers. 

Moreover, recent findings from the ongoing Multi-Ethnic Study of Atherosclerosis (hardening of the arteries) show that compared with white, Chinese, and Hispanic people, Black people had the highest rates of dying from all causes, and after adjusting for age and sex, a 72% higher risk of dying from heart disease vs. white peers.

“Once we adjusted for social determinants of health, the differences between Blacks and whites for the likelihood to die nearly went away,” explains Wendy Post, , MD, a professor of cardiology at Johns Hopkins Medicine in Baltimore and lead author of the study. “Meaning that if we had the same environment, we probably would have similar mortality rates.”

With regard to “environment,” Post is referring to the impact of non-medical factors on health outcomes, better known as social determinants of health. More and more, research is focusing on how these factors tend to sustain health inequities and worse cardiovascular outcomes in Black Americans. 

“We’re beginning to understand that this significant increase in cardiovascular disease is due to significant differences in social determinants of health. This can include everything from access to routine health care, insurance coverage, medications and, also, food supply and access to healthy food,” says Roquell Wyche, MD, a Washington, DC-based cardiologist. 

Wyche explains that social determinants of health can also “include housing, access to a healthy environment that facilitates exercise, where a person can feel safe in their environment, socioeconomic status, work and job security, and transportation. All of these have significant impacts on cardiovascular health, and African-Americans experience greater social disadvantages across all of these determinants.” 

Currently, the World Health Organization estimates that social determinants of health are responsible for as much as 55% of health outcomes overall. 

Quentin Youmans, MD, a cardiology fellow at Northwestern Medicine Bluhm Cardiovascular Institute in Chicago, echoes Wyche, pointing to rates of high blood pressure in the Black community as an example. 

“When we think about the main primary contributor for poor health and cardiovascular health, we think about hypertension as being one of the primary causes in Black Americans. And it’s not just the prevalence of hypertension; we know that Black patients, even if they have a diagnosis, are less likely to have their blood pressures controlled,” he says.

“This [hypertension] is a very insidious disease” that can be undiagnosed and may not cause symptoms until a patient goes to the doctor with either cardiovascular disease or a stroke. “And, so, because of these factors that contribute to not having access to care, patients may have hypertension for longer.”

Importantly, access to care includes access to proven treatments. A National Institutes of Health-supported study published last month in Circulation: Heart Failure showed that Black patients treated at heart failure specialty centers were roughly half as likely to receive evidence-based, life-changing therapies (such as transplants or mechanical blood pumps known as ventricular assist devices, or VADs) as white adults.

But when the researchers accounted for things that affect health outcomes, including disease severity and social determinants of health such as education, income, and insurance, disparities remained, even when patients expressed the same preference for lifesaving treatments. In their discussion, the study authors also suggested that unconscious bias and structural racism also contribute to how these health determinants play out across many conditions.

“We need to look at and see how structural racism is really affecting African Americans, particularly in social determinants of health,” notes Wyche, who’s also leadership development chair for the American Heart Association’s Greater Washington Region Board of Directors. 

Still, this is not to say that genetics are not important, but even a family tendency to have conditions linked to heart disease – such as type 2 diabetes – have direct ties to determinants of health. For example, poor access to healthy food or the ability to afford medicine can worsen diabetes or, more importantly, the ability to reverse prediabetes (the stage before diabetes) with lifestyle changes. Currently, the American Heart Association estimates that Black American men get diabetes 1.5 times more often than white men, and Black women 2.4 times more often than white women. 

A Path Forward

Structural racism and even unconscious bias play key roles in keeping up poor heart health outcomes in African Americans. Yancy emphasizes how the preponderance of heart disease is both a risk and an opportunity.

“We know strategies that work; we have evidence that demonstrates that we can change the arc of this disease burden, and we can improve outcomes,” he says. “So, the greatest risk, the greatest need truly is in those who are self-described as African American or Black. But the greatest opportunity exists there as well if we deploy those things that we know to be true based on sound evidence.” 

Yancy explains that in 2010, he helped lead American Heart Association efforts to drive change through the creation of “Life’s Simple 7” (updated in 2022 to Life’s Essential 8), which is a guidepost for achieving better heart health outcomes by changing certain behaviors and key measures of cardiovascular disease: diet, sleep, physical activity, smoking cessation, weight management, cholesterol, blood sugar, and blood pressure. 

“Primordial prevention, which is prevention of risk itself, is a key consideration,” he says. “This really gets to the root cause of why we see hypertension and diabetes – so much of this is related to early childhood dietary decisions and physical activity.”

Now, he says, “we just have to adopt the will to make changes at the community level.”

One strategy, Wyche says, is to seek medical care in early adulthood, both to establish some sort of prevention strategy before disease develops, and to learn if risk factors such as high blood pressure or high cholesterol are already starting to drive full-blown conditions.

“Just as annual routine medical care is key, we are noticing that particularly in African American women as early as their 20s, that they’re showing evidence of cardiovascular disease.” 

Another strategy is to recognize that social determinants of health and related health outcomes are commonly found across generations and families, and to see it as an opportunity.

“The main thing that comes to mind is engaging not just the patient, but recognizing that risk can sometimes be generational,” says Youmans. “If we can shift our focus [from] the individual patient and think about generations and entire families, then we might be able to encourage more people to follow the recommendations needed to achieve ideal or optimal health.”

Yancy, Youmans, Post, and Wyche remain optimistic, even amid the disparities in health care access and outcomes – and increased public attention their link to oppressive structures and policies – that both COVID-related disruptions and Black Lives Matter, respectively, have brought to the fore. 

“I believe that we’ve gone through a generational movement,” says Yancy. “I think that in 10 years, we’ll see the positive yield of transformational experiences in the last 3 years with a more diversified workforce, a workforce that is more aware of the disease burden in the community members, community members that recognize the maladies of their own social environment, and leaders seeking change vis-a-vis public policy for change.”

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Equal Access to Heart Failure Treatment for All

If you have heart failure, the right treatment can make all the difference in improving your symptoms and extending your life. Treatments range from lifestyle changes like cutting back on salt to a heart transplant for the most serious cases of heart failure.

In the U.S., heart failure is more common among Black and Hispanic people than among white people. Black people are more likely to have heart failure at a younger age and lose their lives to the disease. Kelly McCants, MD, a cardiologist with Norton Healthcare in Louisville, KY, calls it the “40/40 club.” 

“Forty percent of heart failure diagnoses in our hospital happen in African Americans under the age of 40.” McCants says this startling statistic is similar to heart failure rates in other big cities with large Black populations. 

Besides these health challenges, Black and Latino people face major hurdles to getting treatment for heart failure. Research shows these groups are less likely to get:

  • Care from a cardiologist when they’re in the hospital and critically ill from heart failure
  • Advanced heart failure therapies like a heart transplant
  • A doctor’s referral for a cardiac rehabilitation program 
  • Surgery to implant cardiac devices

The reasons for these health disparities are complex. Things like your health insurance status, bias in the health care system, and lack of representation in clinical research all play a role. Addressing these barriers can help Black and Hispanic people gain equal access to treatment.

Removing Barriers to Heart Failure Treatment

Know your numbers

The first step to accessing treatment for heart failure is to understand your chances of getting the disease. You’re more likely to have heart failure if you have conditions like high blood pressure or diabetes. And some minority groups live with these conditions more often.

McCants, who is also executive director of Norton Healthcare’s Advanced Heart Failure and Recovery Program and the Institute for Health Equity, says many Black and Hispanic people don’t know if they have high blood pressure, a major cause of heart failure. “We’re usually unaware of our [blood pressure] targets in terms of the 120 over 80.”

High blood pressure is a “silent killer,” so the only way to know if you have it is to check your numbers routinely. Your doctor can tell you how often to check your blood pressure. You can do it quickly at the doctor’s office, a pharmacy, or – with the right equipment – even at home.

Paying for health care

When your doctor says you have heart failure, one of the first questions you may ask is how you’re going to afford heart failure treatment. A heart failure diagnosis often requires expensive medicines, frequent hospital visits, and close tracking by doctors. 

The cost of health care is a critical concern for many people, especially for those who have less money. Data show that people of color people are more often uninsured or underinsured and live in poverty than white people. 

“When patients are faced with a choice of either taking medication or having money for food, that’s where it becomes a very difficult balance,” says Jim Cheung, MD, a cardiologist and electrophysiologist with Weill Cornell Medicine in New York. 

The more serious your condition, the more expensive treatment can get. One example: a heart transplant. If you have advanced heart failure, you may need a new heart from a donor, a surgery that costs more than $1.6 million. Transplant centers need proof of health insurance or other financial resources before they will even put you on a waitlist for a new heart.

The Affordable Care Act (ACA) and Medicaid expansion have improved access to treatment for many. One study found a 30% increase in the number of African Americans added to heart transplant lists in states that expanded Medicaid. The number of Hispanics on these lists grew as well but only a little. 

Bias in the health care system

Your race or ethnicity can also impact how health care professionals treat you for medical conditions, including heart failure. For decades, scientific research has shown that minority groups have fewer medical procedures and get poorer care than white people. This is due, in part, to unconscious bias by health care professionals.

Researchers looked at how your race influences doctors’ decision-making about advanced heart failure therapies. Overall, race doesn’t seem to play a role in whether doctors suggest different treatments. But if you’re Black, doctors are less likely to propose a heart transplant, especially older doctors.

Research shows your chances of better health outcomes rise when you identify with and trust the person treating you. “It sure does help when culturally you can identify [with your provider] — if you have similar lived experiences or come from similar backgrounds,” McCants says. “As health care systems and providers, we ought to mirror the communities that we serve.”

“I think that will do a lot to reduce communication problems between physicians and patients,” Cheung says. 

Unfortunately, it may not always be possible for Black and Hispanic people to visit a cardiologist who looks like them. Underrepresented minorities make up less than 8% of cardiologists in the U.S.

Representation in clinical trials

Researchers carry out clinical trials to learn if a new or existing medical treatment works or has any harmful side effects. These studies rely on volunteers to test therapies and treatments. The results determine which medications and other treatments doctors will prescribe to all their patients. 

But the study participants aren’t always a good representation of all patients. There are often far more white people in these studies than Black or Hispanic people. Sometimes, the study results don’t even report the races or ethnicities of the study participants. In those cases, doctors have no way of knowing whether the treatments work equally well for people of all racial and ethnic backgrounds.

Blacks and Hispanics have long lacked representation in clinical trials for heart failure therapies. This is despite having higher rates of the disease. Clinical trials that include more racial and ethnic minorities “give us great insight into the impact of therapies on our patients,” Cheung says. “And not just some patients, but all of our patients.”

In late 2022, the U.S. Congress passed legislation that calls for more diversity in clinical trials. It requires drug sponsors to submit a diversity action plan to the FDA. The plan must include the sponsor’s enrollment goals and how they plan to meet them. This could begin to pave the way toward research discoveries that apply to people of all colors and not just some. 

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